Great news!

I have some great news today! I am so excited to tell you all that this morning we took Little Miss in for her Autism Evaluation with Knights of Columbus and she came back with no signs of autism! They said it's just SPD and behavioral issues! YAY!!! They said that I'm doing everything I need to be doing to help her and that hopefully by the age of 3 she won't even need therapy anymore but we'll have to wait and see how she progresses.

This isn't something I've been overly concerned with lately because she has been making great progress, saying new words, communicating a little better and learning more signs, but we filled out all the paper work and made the appointment MONTHS ago so we went anyway. It's great to know that she is making such great improvements and that we have something to look forward to. So far today she has had a great day and is now sleeping peacefully for a late nap.

On the down side of things we do still have to take her to a GI Specialist. As I told you before she has chronic, constant diarrhea and has had it her whole life. The past 4 weeks (going on 5) she has hardly been eating or drinking much so this is a concern that she will get dehydrated and/or sick from not eating enough or start to loose weight. We are now going to start charting her food/drink intake, diapers and weight. The doctor says that since the enzyme deficiency is so rare that it is more likely that she has Celiac Disease and not an enzyme deficiency like her brother. We will have to take her in for evaluations, blood and stool work and possibly a intestinal biopsy. I will update more later as things progress.

As for now we are crossing our fingers that good news awaits us. Please keep Little Miss in your thoughts and prayers. :)


Tammy said...

Celiac Disease means a GFCF diet. Or is it just gluten free? At least it is easy to test for. Congrats on the diagnosis. I am going to add you to AutismLearningFelt. Thanks for joining. Let me know when the new site is up and we will do a feature on mine for you.