Tuesday

Under Our Umbrella: Part One




The "Umbrella" song by music artist, Rhianna holds special meaning for me. The lyrical masterpiece about sharing the shelter of her love stirs haunting memories of a poignant time in my family's lives. It marks the beginning of our journey. It all started last summer, a few days before the school year began.


I won't go into detail about the events of the evening, but I will tell you that it was a life changing night, not just for me, but for my oldest son. He was eight at the time and had been diagnosed as ADHD two years before, although I had known that it was coming for a long, long time. There was just something different about him. He is just one of seven kids in our family, so I have many others to compare his behavior to. I know it has been said that a parent should never compare their children. In my son's case, however, comparison is what saved his life.


The whole month that led up to the night that changed everything, my son's mood stability was erratic and behavior plummeted. His bad moods got worse, his rage uncontrollable and his good moods were almost manic. He couldn't sit still to save his life, couldn't focus, couldn't react normally to anything I told him. He was becoming a monster to his siblings. Our days were suddenly tormented with his fits of rage and depression, hyperactivity, brutal attacks and I almost hated being his mother. I also hated myself for hating it. I didn't even know the child he had become. I was being told that it was ADHD, but in my heart, I knew something else was going on.


My name is Kadi and this is just the beginning of our Umbrella story...

Thursday

Birthdays With The ODD Child

Birthdays and Christmas are usually a cause for excitement and celebration. In our house, Zach really knows how to put a damper on these occasions. This year for his birthday, we got him Blendy Pens, Croc-A-Doodles - he can draw on his Crocs, wash it off and start over with these, and a Razor scooter. All things he has seen and asked for. All things we knew he would like based on his interests. Zach's been dying for a scooter to keep up with the other kids around here because he refuses to learn to ride a bike. He's scared. Here's Zach's reaction to his presents.

The verdict: According to him NOT a very happy birthday because we didn't get him yet more Star Wars stuff. Nevermind that he got almost all Star Wars stuff for Christmas, he bought 5 new action figures with the birthday money one set of grandparents sent, and his godmom usually sends him whatever the newest Star Wars transformers are.

Tuesday

Great news!

I have some great news today! I am so excited to tell you all that this morning we took Little Miss in for her Autism Evaluation with Knights of Columbus and she came back with no signs of autism! They said it's just SPD and behavioral issues! YAY!!! They said that I'm doing everything I need to be doing to help her and that hopefully by the age of 3 she won't even need therapy anymore but we'll have to wait and see how she progresses.

This isn't something I've been overly concerned with lately because she has been making great progress, saying new words, communicating a little better and learning more signs, but we filled out all the paper work and made the appointment MONTHS ago so we went anyway. It's great to know that she is making such great improvements and that we have something to look forward to. So far today she has had a great day and is now sleeping peacefully for a late nap.

On the down side of things we do still have to take her to a GI Specialist. As I told you before she has chronic, constant diarrhea and has had it her whole life. The past 4 weeks (going on 5) she has hardly been eating or drinking much so this is a concern that she will get dehydrated and/or sick from not eating enough or start to loose weight. We are now going to start charting her food/drink intake, diapers and weight. The doctor says that since the enzyme deficiency is so rare that it is more likely that she has Celiac Disease and not an enzyme deficiency like her brother. We will have to take her in for evaluations, blood and stool work and possibly a intestinal biopsy. I will update more later as things progress.

As for now we are crossing our fingers that good news awaits us. Please keep Little Miss in your thoughts and prayers. :)

Monday

Pacfic Pediatric Supply WINNERS!!!






For the Net Swing:

True Random Number Generator
Min: 1
Max: 184
Result: 28
Powered by RANDOM.ORG


Lisa♥ @ FinalScore:Boys3Girls2 said...
28

entry #4






Peanut Ball #1:

True Random Number Generator
Min: 1
Max: 184
Result: 22
Powered by RANDOM.ORG

FrIeNdS said...
22

I am following your blog!AmberCrystalclearbc@aol.com



Peanut Ball #2:

True Random Number Generator
Min: 1
Max: 184
Result: 161
Powered by RANDOM.ORG

lilyk said...

161

I learned that over the years, Pacific Pediatric Supply (PPS) has steadily grown into becoming a full-service therapy supplier, servicing clinics, schools, daycare centers, hospitals, and homes around the world. #4




Congratulations to the winners! You have only 48 hours to answer my confirmation email or the prize(s) will go into a live giveaway contest. Thanks to everyone that entered this contest and look forward to more coming soon.

Pacific Pediatric Supply GIVEAWAY!

This is a sticky post! To read the more recent posts please scroll down!



I am so excited to tell you all about our new review and giveaway! This is going to be great! The reasons why I'm so excited about it is because #1: they're great giveaways, #2: I know they will help out your kids and #3: they're awesome products that are so fun! So are you on the edge of your seat yet? This months giveaway is:
Net Swing and....(read more)

Summertime Chaos

I know I've been MIA from this blog for awhile. We were getting ready for my sister's wedding and school has let out for the summer.

Summer is especially challenging for us. Zach thrives on the strict routine that the school day provides him. At home, I'm just not programmed to be that strict. I suppose if I were a parent who over scheduled their child I could be, but that's just more work than I'm willing to put forth. Summer is my vacation too. I like that we don't have to run here there and everywhere by a certain time and day on a constant basis.

The last couple weeks have been especially challenging in our household. Zach's out of school and out of his routine for one. For another, the anticipation of his birthday this week is absolutely killing him. It's very much like the anticipation kids get at Christmas and then they start acting out because they're so excited they don't know what to do with all that energy. Then his Dad is leaving to go TDY for a month. Being a Daddy's boy, these separations are harder on Zach than the rest of us I think.

What do I do to curb the summertime chaos? I try to have a routine, but let's face it; sticking to my 2 year old's nap and bedtime schedules are hard enough. I'm just not a schedule person. I make sure Zach plays outside as much as possible. The more he runs around and plays physical games, the better he behaves when we need him to sit. Kicking around a soccer ball is a current favorite. I have to admit, it won't hurt my waistline to get out there with him either. During those weeks where it seems like we're in monsoon season, I pack up the kids after a couple days and we go somewhere that has an indoor play area. Their current favorite is a local coffee shop that also serves sandwiches. They have a train table that I have to pry my boys off of when it's time to leave. No matter that they have one here and a ton of trains and track.

When my husband is gone we run a lot of our errands after nap time. It kills that afternoon witching hour when the kids get all squirrely hanging out at home. It's one of the perks of not having a work schedule to go around. When we don't have errands to run, I'll take them to the park or pool. By the time we get home, it's time for dinner and then baths and bed. Of course I collapse on the couch after they're both in bed, but it's worth it to get through that hardest part of the day with them.

What do you do to get through what can be long and boring summer afternoons with your kids?

Summer + Routine Changes = Trouble!





Ahh...summer! It's here! Which for anyone with a child suffering from SPD or autism knows summer requires a schedule change. Little Miss does not do well with any sort of change, so the past two weeks have proved pretty difficult. It is going to take time I'm sure and then just as soon as we all get used to it it's going to be school time again and another schedule to get used to all over again. Great!



The past two weeks have been filled with tantrums, meltdowns, restless nights/naps and decrease in appetite for Little Miss. The meltdowns and tantrums I can handle...or at least try to, however, the restless nights/naps and lack of appetite worries me. Little Miss and Little Man both have enzyme deficiencies in their GI tracks (they were both born without the sucrase enzyme in their GI tracks) which means that they need a special diet to stay healthy, strong and keep them growing and stop them from loosing weight. Since the schedule has changed (or slightly before it changed) Little Miss has been barely eating. I haven't noticed her loosing weight though but I might if I was weighing her everyday...I don't know.



Since Little Miss is so difficult most of the time and obviously doesn't do well with changes I have yet to start her on this special diet of no sugar, no juice, no fruit, no high fructose corn syrup and so on. It sounds selfish of me (ok it is) but I am just picking my battles at the moment. We had her IFSP on Friday and decided that since I have all three therapists here three days (1 day each) a week then we need to start this diet. And let me tell ya, I'm nervous and IT'S.GOING.TO.SUCK!!! We're going to have tantrums and meltdowns times 4 (breakfast, lunch, snack and dinner), she is more than likely going to be eating and drinking less than she already is and I wouldn't be surprised one bit if she gets admitted to the hospital like Little Man did because of a surprising weight loss and dehydration. We'll see!



It's bad enough having three semi special needs children, having them all at home with different needs and wants, summer home schooling my oldest with her regular school work and her vision therapy, trying to keep them busy and happy while we wait for our new swing set and now to add on top of all that we're going to start something completely new to Little Miss. I'll be praying every night that I don't loose my mind...at least it would be a short trip though! ;)



We're going to be having family days all summer on Tuesdays which will be fun. BBQs, fun trips to local parks, museums and festivals and just being together as a family. It's usually pretty difficult to even go to Wal-Mart with Little Miss, although she has improved somewhat, so going out on these family days will be fun but probably more stressful then fun. Taking the kids to a big animal park last week was fun minus the tantrums, meltdowns, screaming and strange 'WTF?' looks from strangers. Although, as you can see in the above photo she did love feeding the goats! That 'my child has SPD' sign on her back is sounding better and better. Which brings me to my question in this post:



Question: When you go out in public and your child is having a serious meltdown and you're getting all kinds of looks from bystanders, what do you do? Do you tell people that your child has SPD (or whatever it is that they suffer from)? Do you ignore them and mutter, 'If you only knew' in your head? Or do you do something else? I would love some tips on how to save myself from embarrassment and stares.

Thursday

Incorporating Sensory Input into Daily Activities

A couple of weeks ago I got a sheet from our Occupational Therapist (who will be coming on board soon) about how to incorporate sensory input into your child's daily activities. I think they're great ideas so I wanted to share them with you.





BATH TIME: Scrub with washcloth or bath brush, try a variety of soaps and lotions for bathing, play on the wall with shaving cream or bathing foam, rub body with lotion after bath time (deep massage), sprinkle powder onto body and brush or rub into skin.

MEAL PREPARATION OR BAKING: Let your child mix ingredients, especially the thick ones that will really work those muscles. Let child mix and roll dough and push flat. Allow child to help you carry posts and pans, bowls of water or ingredients (with supervision, of course). Let you child tenderize meat with the meat mallet.

GROCERY SHOPPING: Have your child push the heavy cart (as long as the weight is within their capabilities). Let your child help carry heave groceries and help put them away.

MEALTIME: Encourage eating of chewy foods and drinking out of a straw. Try having your child sit on an air cushion to allow some movement. A weighted lap blanket may be helpful as well.

HOUSEHOLD CHORES: Allow the child to help with the vacuuming or moving the furniture. Let the child help carry the laundry basket or the detergent. Let the child help with digging for gardening or landscaping.

PLAYTIME: Reading books in a rocking chair or bean-bag chair may be beneficial. You can help your child make up obstacle courses in the house or yard using crawling, jumping, hopping, skipping, rolling, etc. Listen to soft music. Play the sandwich game (child lies in between two pillows and pretends to be the sandwich, while you provide pressure to the top pillow to the child's desired amount.) Ask them "harder or softer?" as you push on the pillow. Some children will like much more pressure than you would expect. you can also go for a neighborhood walk with a wagon and have your child pull it (make it semi-heavy by loading it with something the child would like to pull around). You can do the same with the baby-doll carriage. Swimming in a pool is a wonderful activity if you have that available,, as are horseback riding and bowling. Mini or full-size trampolines are excellent for providing sensory input as well. Make sure the child is using them safely. Sandboxes or big containers of beans or popcorn kernels can be fun play-boxes too if you add small cards, shovels, cups, etc.

ERRANDS AND APPOINTMENTS: Before visiting the dentist or hairdresser try deep massage to the head or scalp (of tolerated), or try having your child wear a weighted hat. Try chewy foods or vibration to the mouth with an electric toothbrush. Let your child wear a heavy backpack (weighted to their liking with books and with the straps padded as needed). Be sure to give the child ample warning before any changes in routine or any unscheduled trips or errands. Many children with SPD need predictability.

OTHER GENERAL GUIDELINES FOR THE HOME:

~ Keep routines and possessions organized.

~ Be consistent with rules and consequences.

~ Keep an activity schedule or calendar posted.

~ Create specific routines for troublesome times of the day (bedtime or getting ready for school).

~ Discuss upcoming anticipated changes in routine at a point in time that is beneficial for your child. You will have to experiment with how early the child "needs to know".

~ Try to indirectly use your child's sensory preferences for fun rewards to help you handle behavior. For example, having your child work towards an extra trip to go bowling or horseback riding may be helpful. However, try not to restrict movement activities when you child is being disciplined. For example, taking away recess time or playground time for not sitting at the table appropriately during dinner may not be the most effective way to deal with these issues. Your child may need movement time, and by removing it, his or her behavior may actually become more difficult later.






Try some of these suggestions and let me know if they work for you. I'd love to hear feedback if you do them. I would also love any tips that you can offer on how you deal with your child's tantrums, behaviors, etc.

Monday

Pacific Pediatric Supply Review & Giveaway

This is a sticky post! To see the most recent postings please scroll down! Thank you!









I am so excited to tell you all about our new review and giveaway! This is going to be great! The reasons why I'm so excited about it is because #1: they're great giveaways, #2: I know they will help out your kids and #3: they're awesome products that are so fun! So are you on the edge of your seat yet? This months giveaway is:

1 Doorway Net Swing System

and

2 Peanut Balls

That's right! I have *3* things to giveaway and all from Pacific Pediatric Supply! They have been so generous in this giveaway! So I will have not one, not two but three winners this month! Let me tell you a little bit about Pacific Pediatric Supply!

Pacific Pediatric Supply is based out of California and was started in 2004 by a husband and wife team! Since then, they have been providing a new source of innovative, high quality sensory integration products for autistic and special needs children. Over the past 4+ years they have become a wonderful, growing supplier helping schools, day cares, clinics, hospitals and homes across the globe!

Their main website offers over 1,000 products! They also have over 300 products on their Ebay store and 400 products on Amazon. They sell wholesale to websites and magazines and even internationally! Whatever the needs of your child Pacific Pediatric Supply has products for kids and parents! Here is a list of their product categories:

Whether you have a special needs child or work in a special needs facility, these products are for you! Here are a couple photos of just some of the products they offer.

Toddler Rockers

Tactile Brushes

Porcupine Balls


Chewies

Body Sox
As I said before Pacific Pediatric Supply is giving away 3 prizes! They sent me one net swing and one peanut ball to review and my kids love them. They're not only good for therapy but they're also good for fun activities so they can get their energy out! Take a look at this short video of one of the prizes being given away. (And don't mind me saying, 'um' every ten seconds! I was trying to quietly control my son while taping! lol)



Cool net swing huh? My kids love it and I'm sure yours will too! All 3 of my children have SPD and have been in therapy now for a while. However, my youngest daughter is the one that needs ongoing therapy every day. This swing is something that really helps give her input to make her day a little easier. If I'd let her, she would stay in it all day long. As you can see in the video we put a body pillow in the swing to make it easier for her to get in and out of. However, you can also lay down in it on your back or belly without a pillow. The full system net swing is a $97 value and comes with a doorway support bar, rope extensions, swing, screws and instructions. The nets rope is of good quality and holds up to 175lbs. And when installed correctly doesn't interfere with the door opening and closing.


Let's move on; below is a picture of the peanut ball. This ball is used just like a yoga ball would be for therapy the only difference is that it is designed so that children can do it on their own. With this their feet touch the ground so they can jump without having to hold on to someone or something to keep them from falling. Very brilliant idea if you ask me! I was surprised at the quality of plastic used to make this ball. It's very thick so it won't puncture easily. I really liked the fact that it is good for therapy OR just for exercise! And with being only $28 they are affordable.

Well now I have introduced you to Pacific Pediatric Supply, showed you pictures of some of their products and given you links to check them out further. Now it's time to tell you how you can win one of the prizes.


MANDATORY ENTRY:
Head over to Pacific Pediatric Supply and look around. Come back and in a comment tell us one of your favorite products that we did not talk about here.


EXTRA ENTRIES:
~ Blog about this giveaway with links back to us and Pacific Pediatric Supply
(5 entry points)
~ Tell us one thing you learned about Pacific Pediatric Supply that we did not talk about here.
(4 entry points)
~ Follow us on Twitter
(3 entry points)
~ Fave us on Technorati
(3 entry points)

~ Follow this blog
(3 entry points)

~ Grab our button and display it on your blog
(3 entry points)


UNLIMITED ENTRIES:

~ Tweet this giveaway and in a comment give us your tweet URL
(2 tweets only per day please)





Contest ends on June 22 at 12pm Central time. Winners will be picked using a random generator and announced later on in the day. Only one prize per person/household. The winners will then have to answer our confirmation email and respond within 48 hours or a new winner(s) will be drawn. No exceptions!


Contestants may only enter using one name and one email address to enter. Any contestant that does not follow the rules (i.e. Mandatory entry FIRST, spoofed entries, etc.) will be disqualified.


Thanks for entering this giveaway and good luck to everyone!